ME/CFS recovery stories at the Phoenix Rising forum

Hip, a ME/CFS patient who is very active online, has kindly compiled a list of recovery stories grouped by treatment. The list is long but it may be a decent reference.

  • Valcyte (Valganciclovir) Antiviral Drug for Herpes Family Viruses
  • Valtrex (Valaciclovir) Antiviral Drug for EBV
  • Valtrex and Valcyte in Combination
  • Tenofovir — Antiviral Drug
  • Antiretroviral Combinations (Tenofovir, Raltegravir, AZT)
  • Sofosbuvir — Antiviral
  • Spironolactone
  • Ampligen — Interferon Inducer
  • Oxymatrine (Equilibrant) Immunomodulator
  • GcMAF — Immunomodulator
  • Low-Dose Oral Interferon Alpha
  • High-Dose Selenium
  • Low-Dose Abilify
  • Low-Dose Naltrexone (LDN)
  • Nimodipine — Calcium Channel Blocker
  • Cinnarizine — Antihistamine and Calcium Channel Blocker
  • Rapamycin — Immunomodulator
  • Tagamet (Cimetidine)
  • High-Dose Progesterone
  • Ketogenic Diet
  • Helminth Therapy
  • Kambo
  • Fecal Microbiota Transplantation (FMT)
  • Bowel Flush With Colonoscopy Prep Laxative
  • Photobiomodulation / Low-Level Laser Therapy / LED Light Therapy
  • C60 Supplement
  • Bob Beck Blood Electrifier
  • Nitrate Drugs
  • Atorvastatin — Statin Drug
  • Mitochondrial Supplement Cocktail
  • Dr Kenny De Meirleir Protocol
  • Peptides LL-37 and BPC-157
  • ATP Injections
  • Diamine Oxidase Supplement
  • High-Dose Sublingual Biotin
  • Inosine and DMAE (Homemade Imunovir)
  • Surgical Treatment of a Jawbone Cavitation Infection
  • Treating Nasopharynx Inflammation in Vaccine-Triggered ME/CFS
  • Surgery for Craniocervical Instability
  • Jawbone Realignment
  • Tricyclic Antidepressants
  • Mild Hyperbaric Oxygen Therapy
  • Pridgen Protocol (Famvir and Celecoxib)
  • IgY Immunoglobulins From Chicken Eggs
  • Yoga Exercises
  • Moving to Hot and Sunny Costa Rica
  • Active Prism Lenses To Treat Proprioception Dysfunction

There are also anecdotes about treatments that help particular symptoms.


Some of the treatments above seem to cause permanent or long-lasting worsening in some people. For example, while HBOT is the most proven treatment for Long COVID so far, it seems to cause worsening at lower pressures 1.5 ATA and below and above 1.5 ATA.

The thread