H.e.l.p aphersis - cyprus

[glenn_chan]

@Ed1

I was previously working with Ria at Long-haulers who has since taken time off indefiently where I did a Live blood analysis and saw the coagulation and micro-clots and other unwanted bits.

The live blood analysis will show rouleaux but not microclots. The test for microclots involves fluorescence microscopy.

That being said, I don’t think that the test for microclots is particularly helpful. Some healthy people have an elevated level of micrclots, while some long haulers don’t. I highly recommend that you read the following thread:

Microclots and triple anticoag- What you need to know

First of all, what you should know is that the ‘science’ from Pretorius, Kell, and their colleagues was not done in good faith. #1 Version 1 of their preprint claimed that all 24 of 24 patients got better on triple anticoag. Then version 2 of that preprint removes all of the clinical data. It calls for RCTs without mentioning any of the clinical data that they had. Given all of the LC and MECFS patients that tried triple anticoag, it seems highly likely that the 100% response rate was fabrica…

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@Ed1

Im thinking about going to Cyprus to get the treatment

The HELP apheresis clinic in Cyprus may be doing the most dangerous and worst out there. Look up the situation with the ME/CFS patient Jack, who is no longer with us.

There’s survey data on HELP apheresis but it will not capture data from people who are no longer able to complete surveys.

@Ed1

so expensive here in the UK

The UK is a very cheap country to get HBOT due to the charity system there. HBOT helps some people and seems to really harm others. See the primer here:

In case you missed it, HBOT is the most proven treatment for Long COVID

[image] The most reliable scientific evidence comes from double-blind randomized controlled studies. There have only been a handful of those for Long COVID or similar conditions: Hyperbaric oxygen therapy (HBOT) Leronlimab, a CCR antagonist AXA1125 Phyto-V (RCT link) IVIG for post-polio syndrome (and other conditions), which may be unrelated to Long COVID Rituximab for ME/CFS, which should be more like Long COVID than post-polio syndrome Links to the RCTs can be found at the List of docto…