Advocacy Starter Pack

Stick little notes in books in the library

Spread awareness about your chronic illness.

Advanced advocacy / more time-consuming activities

Media interviews

Talk to Cat Parker, she may be able to connect you with journalists looking for subjects to interview. Go to her Poplme account, go to the “contact me” section, and use Calendy to setup a (Zoom) meeting with Cat.

Network with other advocates, meet with politicians

See the initiatives page for information on how to join our advocacy chat. This is an easy way to get advice from other people doing the same thing.

Follow @c19vaxInjured on Twitter to learn about meeting with politicians- she will host the occasional advocacy space where she can teach you what to do. These spaces are recorded so here’s a May 21 2023 space on advocacy that you can listen to (at double speed).

Help run support groups

You can run your own support group or help somebody else moderate their group. This is often thankless work that happens in the background- there are often disputes that you will need to mediate. If you would be unhappy if the owner of a group mistreats you, then you may want to limit yourself to moderating groups where you are the owner.

Patient-led research

Some groups who have collected survey data could use help analyzing it. e.g. UKCVFam / Harriet Carroll / Kevin Deans, perhaps Tom Bunker (Long COVID + vax injury research), etc.

Register a 501c3 or non-profit

A lot of companies will give you things for free like web hosting, Microsoft Office, Canva, etc. Google Adwords will provide you with $10K in free advertising. Hopefully we have somebody who will walk you through the ropes of advertising with Google Adwords.

Contact bloggers and/or journalists

Public advertising, billboards

CAERS / YANA is putting advertising on trucks.

Ernest has a trailer.

?VSRF? has paid for billboards promoting Ernest Ramirez’s story. StopTheShots.ca has billboards but I can’t find any pictures of them.