The NIH’s RECOVER study is a massive study that is tracking different groups of people over time.
EHR study Highlights
One of the groups is a cohort of pregnant women, identified through EHR - electronic health records. Their dataset was pretty massive.
- The EHR study found that PASC was less common (!) when infection happened during pregnancy - 25.5% versus 33.9%. See the slide at 18:41.
- Their definition of PASC may be janky because the incidence of PASC is so high- this doesn’t align with the type of Long COVID that we see in online support groups. The online support groups are relatively small and not indicative of such a high prevalence of PASC. In other words, the NIH may not necessarily be studying the Long COVID that people talk about in Long COVID support groups.
Observational cohort study highlights
This is a more rigorous study (more money → better study design) which enrolled many patients and tracked them over time.
- 10-25% incidence of PASC described at 30:18. This suggests that they aren’t studying the Long COVID that is discussed in support groups.
Youtube presentation
