My Recovery Story - I can work again, minimal suffering from lingering symptoms

I didn’t try mold avoidance (e.g. living in the desert like Jenn Brea), but the ME/CFS doctor John Chia talks about it. Search for the word mold in that thread.

is there any evidence that if you are still managing symptoms after 2 years they are permanent / will not resolve.

I don’t see it that way. What happened to me is that my health is in some ways better than my pre-vax self. I used to be able to sleep only at 6-8AM… now that doesn’t happen (it flips between 2-3AM and 11PM). My pre-vax fasciculations are mostly gone.

The sleep issue really messed with my ability to be in sync with society, e.g. can’t hold a 9-5 job. I’d rather have the irregular heartbeats and not being able to do extreme exercise.

Are there any stories in your research where people make recoveries after 2 years.

My surveys can’t really capture that completely. If you look at the heatmap in the slides, you can see like 2-3% are recovered if you set the bar as high as it can go (with the survey’s methodology).

I think mostly recovered is a reasonable bar because there’s a world of difference between that and being sick.